The Epilepsy Foundation is committed to people with epilepsy, their family members and caregivers and advocating for…
- Funding for epilepsy programs, research, and a cure
- Policies that promote research and innovation
- Improving access to and coverage of quality care and essential services
- The protection of the rights of individuals with disabilities.
These broad goals guide our federal and state advocacy activities.
Join our Speak Up Speak Out advocacy network and help us raise awareness with public officials about the public policy issues important to the epilepsy community.
The 2019 Iowa Epilepsy Advocacy Day was held March 12th at the Iowa State Capitol! Thanks to all who participated in supporting Iowa’s epilepsy community!
Find your local legislator on this link.
Teens Speak Up! and the Public Policy Institute is the Foundation’s centerpiece advocacy initiative. Every year we bring together over 150 advocates, including Epilepsy Foundation affiliate staff, parents, teens, doctors, and volunteers from across the nation. Through this initiative, we are able to strengthen our advocacy network and share updates on the state of epilepsy research & funding, as well as give our families an opportunity to speak with Congress and share their stories of living with epilepsy.
Teens Speak Up! provides an opportunity for teens with epilepsy and their parents to visit the nation’s capital, receive advocacy training, meet with their legislators, and tell their personal stories. Teens Speak Up! is part of the Public Policy Institute.
Teens from across the country are nominated by affiliates and selected by the Foundation to participate in the program. After receiving training at TSU, each teen is asked to turn that training into action in their respective home districts through our Year of Service program.
2015 Simon Clark, Des Moines
2016 Kendall Maslak, Cedar Falls
2017 Tanner Kahler, Pleasant Hill
2018 Andrea Bolen, Toledo
2019 Zach Wedel, Cedar Rapids